🧡 Paying Hope Forward for Patients, Caregivers & Families Affected by Prostate Cancer
✦ JONESINGFOR THEJourney Join the Journey

Watch Our Journey

Jonesing For The Journey began as a way to document what happens when life suddenly takes a turn you never planned for.

What started with our own experience became something much bigger — a place to talk openly about prostate cancer, treatment, recovery, caregiving, patient advocacy, difficult decisions, and the unexpected detours that can completely change the road ahead.

Sue and I don’t pretend to have all the answers. What we can offer is our experience in real time: what happened, what we were told, the questions we asked, the decisions we faced, what worked for us, what surprised us, and what we wish we had understood sooner.

Never make an important decision based on a single piece of information. Ask one more question.

The videos on this page follow that journey as it happened. Some are deeply personal updates. Others focus on treatment, recovery, practical resources, or lessons we learned along the way.

New Here? Start Here

Facing a New Diagnosis

Start with videos about diagnosis, testing, asking better questions, getting additional information, and becoming an active participant in your own care.

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Preparing for Treatment

Follow the appointments, treatment decisions, surgery, radiation preparation, and the questions we learned to ask before moving forward.

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Recovery & Life After Treatment

Explore the practical and emotional realities of recovery, including what helped, what surprised us, and the milestones that mattered.

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Patient Advocacy

Learn why understanding your own information, involving the people you trust, and asking one more question can change the conversation.

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Follow the Journey in Real Time

The videos below are pulled directly from the Jonesing For The Journey YouTube channel. You’ll find treatment updates, patient advocacy conversations, recovery experiences, practical resources, caregiver perspectives, and the unexpected detours that continue to shape our story.

Jonesing For The Journey

Jonesing For The Journey
One of the realities of prostatectomy recovery that nobody really prepared me for was dealing with urinary leakage away from home. This is part of the daily struggle when dealing with prostate cancer treatment.Changing a pull-up in a public restroom can be an absolute nightmare, inconvenient, and anything but discreet.For me, switching to an insert/pad made a huge difference. I could carry an extra one with me, change it much more easily, and get on with my day.This is simply what worked for me during my recovery. Every man's situation is different.I share more of what helped me through those first weeks after surgery here:▶️ 7 Things That Got Me Through Prostatectomy Weeks 1–4https://youtu.be/C2_zxAR85_wAsk one more question.And so…the adventure continues.#ProstateCancer #Prostatectomy #ProstatectomyRecovery #MensHealth #Incontinence
Why I stopped using just pull-ups: A prostatectomy lesson #shorts #Incontinence
The first four weeks of prostatectomy recovery are harder than you might expect.The first four weeks after my radical prostatectomy recovery were not what I expected.Recovery was slower, more uncomfortable, and more exhausting than I was prepared for. But a handful of simple things made those weeks a lot easier.Leave a comment with the one thing you wish you had known before your prostate surgery.I share all 7 in the full video:▶️ 7 Things That Got Me Through Prostatectomy Weeks 1–4https://youtu.be/C2_zxAR85_wAsk one more question.And so…the adventure continues.This is my personal experience, not medical advice. Every recovery is different.#shorts #youtubeshorts #prostatectomy #menshealth #prostatecancer #surgeryrecovery #healthtips
I Was NOT Ready for the First 4 Weeks After Prostatectomy #shorts
I wasn't prepared for the first four weeks of my prostatectomy recovery. Here is the honest reality of what to expect at home.Going through prostatectomy recovery after prostate cancer treatment is a massive life event, and the transition back to home recovery can be overwhelming. I am sharing the challenges I faced during those initial weeks, specifically the reality of managing incontinence after surgery and finding ways to cope with sleepless nights.I am showing you exactly how I prepared my home, including the specific incontinence products and bed protection I relied on. This is not medical advice, but rather a look at my personal approach to post-surgery care so you have a better idea of what might be waiting for you when you return home.In this video, I’m sharing 7 things that genuinely helped me through prostatectomy recovery weeks 1–4, plus bonus products and practical tips Sue and I learned along the way.This is not a shopping list. It’s a preparation list.These are products and ideas that helped me during my own recovery. Your experience may be different, and your surgeon’s instructions and discharge plan should always come first.▶️ WATCH NEXT6 Things Nobody Warns You About After Radical Prostatectomyhttps://youtu.be/C2_zxAR85_w🛒 AMAZON STOREFRONThttps://www.amazon.com/shop/jftjjourneyAs an Amazon Associate, I earn from qualifying purchases. Using these links may provide Jonesing For The Journey with a small commission at no additional cost to you.⏱️ TIMESTAMPS00:00 Introduction03:29 1. Daytime Protection05:03 Bonus: Men's Body Spray05:27 2. Nighttime Protection06:13 Bonus: Waterproof Mattress Protector06:42 3. Walking Support07:29 Bonus: Crossbody Bag / Waist Pack08:04 4. Rest Anywhere08:33 Bonus Use: Foley Bag Holder09:28 Members Area09:57 5. Compression Socks10:24 Bonus: Sock Aid10:54 6. Bowel + Gas11:43 Gas-X12:28 Bonus: Water Bottle12:58 7. Easy Cleanup: Scrubzz Rinse-Free Bath Sponges13:41 Bonus: Reacher / Grabber14:28 Recap + Final Thoughts🛒 PRODUCTS MENTIONEDDAYTIME PROTECTIONDepend Men’s Daytime Protectionhttps://www.amazon.com/s?k=Depend+Fresh+Protection+Men&tag=jftjyoutube-20Absorbent Inserts / Booster Padshttps://www.amazon.com/s?k=male+incontinence+booster+pads+inserts&tag=jftjyoutube-20Degree Men’s Body Sprayhttps://www.amazon.com/s?k=Degree+Men+body+spray&tag=jftjyoutube-20NIGHTTIME PROTECTIONDepend Night Defense for Menhttps://www.amazon.com/s?k=Depend+Night+Defense+Men&tag=jftjyoutube-20Disposable Bed / Chair Padshttps://www.amazon.com/s?k=disposable+bed+pads+incontinence&tag=jftjyoutube-20Waterproof Mattress Protectorhttps://www.amazon.com/s?k=waterproof+mattress+protector&tag=jftjyoutube-20WALKING SUPPORTTrailBuddy Trekking Poleshttps://lasso.to/FNvsiBBYLEFENGDONG 35L Packable Backpackhttps://lasso.to/qBRwdqn7whREST ANYWHEREFishboy Square Collapsible Stoolhttps://lasso.to/HGW96FPiYSWhen used with a Foley bag, follow your medical team’s instructions. Keep the drainage bag below bladder level and the tubing free of twists and kinks.COMPRESSION SOCKShello momoya Compression Stockingshttps://lasso.to/HOihC4oPOASock Aidhttps://www.amazon.com/s?k=sock+aid+compression+socks&tag=jftjyoutube-20BOWEL + GASGas-X Extra Strengthhttps://www.amazon.com/s?k=Gas-X+Extra+Strength&tag=jftjyoutube-20YETI Rambler Water Bottlehttps://www.amazon.com/s?k=YETI+Rambler+water+bottle&tag=jftjyoutube-20I have intentionally not linked a specific laxative or stool softener. Follow the bowel plan provided by your surgical team.EASY CLEANUPScrubzz Rinse-Free Bath Spongeshttps://www.amazon.com/s?k=Scrubzz+rinse+free+bath+sponges+25+count&tag=jftjyoutube-20Reacher / Grabber Toolhttps://www.amazon.com/s?k=reacher+grabber+tool&tag=jftjyoutube-20🚐 MEMBERS AREAThe Jonesing For The Journey Members Area is now open. Hit JOIN below this video to see the membership options and benefits.🌐 WEBSITEhttps://jonesingforthejourney.com⚠️ MEDICAL DISCLAIMERThis video shares my personal experience and the products or strategies that helped me during my own prostatectomy recovery. It is not medical advice. Always follow the instructions of your surgeon and healthcare team.🎥 VISUAL DISCLOSURESome product and recovery visuals in this video were recreated for demonstration purposes. My prostatectomy took place before Jonesing For The Journey launched, so not every product or setup was photographed during the actual recovery period.What was the one thing you were really glad you had at home — or wish somebody had told you to have ready? Put it in the comments. Your answer may help the next guy.Real Life. Real Journeys. Real Hope.And so…the adventure continues.#ProstateCancer #Prostatectomy #ProstatectomyRecovery #RadicalProstatectomy #MensHealth
7 THINGS THAT GOT ME THROUGH PROSTATECTOMY WEEKS 1 TO 4
Preparing for radiation therapy? Don’t assume someone else’s preparation routine—including mine—is right for you.Ask your radiation team exactly what THEY want you to do:How much should I drink?When should I drink it?Are there bowel-prep instructions?What about medications?What happens if my bladder isn’t full enough?These may sound like small questions, but when you’re walking into something completely new, the unknowns can create a lot of anxiety.Sometimes simply knowing what to expect makes the whole thing feel more manageable.▶️ WATCH MY FULL RADIATION MAPPING EXPERIENCE:https://youtu.be/tbGrAJYKDok📘 FREE GUIDE — Ask One More Question:https://jftj-media-group-llc.kit.com/f4cf46b906🚙 JOIN THE JFTJ ROAD CREW:https://www.youtube.com/channel/UCzuPs5pny7HZ_VJzZ4qIoSA/joinI’m a patient, not a doctor. This is my personal experience and not medical advice. Follow the preparation instructions provided by your own radiation oncology team.#ProstateCancer #RadiationTherapy #PatientAdvocacy
Don't Copy My Radiation Prep Routine #RadiationTherapy #CancerPatient #shorts
What really happens during 39 prostate cancer radiation treatments?What does radiation treatment actually feel like? Let's track the reality.I’m documenting the physical and emotional milestones of my 39-session prostate cancer journey to show what the pamphlets don't tell you. This is an honest look at the patient experience, moving past the daily countdown to find purpose in the process.After 5 treatments. 10. 20. All the way through 39.I’ll share the fatigue, bladder and bowel changes, emotional impact, everyday-life changes, and the things that turn out to be easier — or harder — than I expected.Because fear loves an information vacuum.Leave a comment and tell me where you are in your own journey.▶️ WATCH THE FULL RADIATION MAPPING VIDEO:https://youtu.be/tbGrAJYKDok💙 FOLLOW THE JOURNEY:https://jonesingforthejourney.com/🚙 JOIN THE JFTJ ROAD CREW:https://www.youtube.com/channel/UCzuPs5pny7HZ_VJzZ4qIoSA/joinThis video shares my personal experience with prostate cancer and radiation therapy and is not medical advice. Always discuss your individual treatment and side effects with your healthcare team.#ProstateCancer #RadiationTherapy #ProstateCancerJourney________________________________________© 2026 JFTJ Media Group LLC. All Rights Reserved.
What REALLY Happens During 39 Radiation Treatments? #shorts
YouTube Channel Memberships are officially live at Jonesing for the Journey.For those who want to go a little further with us, membership is another way to support the stories, patient advocacy, resources, and community we’re continuing to build.Our core mission remains available to everyone. Membership simply helps us keep paying hope forward.💙 Tap JOIN on the Jonesing for the Journey channel to see the membership options.Real Life. Real Journeys. Real Hope.And So…The Adventure Continues.#JonesingForTheJourney #ProstateCancer #PatientAdvocacy #YouTubeMemberships #CancerSupport
A special invitation to our community 💙 #journey #patientadvocacy #shorts
Master patient advocacy to take control of your health.You deserve to understand your body and actively participate in your medical decisions. This video breaks down how to protect your healthcare rights and ensure informed consent is prioritized during every appointment.Subscribe for weekly tips on navigating your health journey with confidence.
The one thing your doctor won't tell you #medicaladvice #patientrights #shorts
Before radiation therapy begins, many patients have a radiation simulation—also called CT simulation or radiation mapping.I take you inside my prostate cancer treatment appointment and explain bladder and bowel preparation, what happens on the table, whether radiation simulation hurts and what comes next before treatment 1 of 39.My situation includes stage 4 prostate cancer, Gleason 9 (Grade Group 5), following radical prostatectomy. This video documents my personal experience and treatment plan. Yours may be very different.I’m a patient, not a doctor. Always follow the instructions from your own radiation oncology team rather than copying my preparation routine.My goal is simple: show you what this process looked like from the patient side of the table so there may be a few fewer unknowns when it’s your turn.📘 FREE GUIDE — ASK ONE MORE QUESTIONDownload my free conversation guide:https://jftj-media-group-llc.kit.com/f4cf46b906🌐 JONESING FOR THE JOURNEYhttps://jonesingforthejourney.com/Real stories, Mile Markers, patient advocacy, caregiver perspectives and practical resources.💙 WANT TO SAY SUPER THANKS?If a JFTJ video helped you and you’d like to support the work we’re doing, YouTube’s Super Thanks option is available below eligible videos. It’s a one-time way to support the stories, advocacy and resources we’re continuing to create.Watching, commenting and sharing helps too — and is always appreciated.🚙 JOIN THE JFTJ ROAD CREWHelp support the stories, advocacy and community we’re building. Members receive badges, emojis, members-only updates, behind-the-scenes content, early looks at selected projects and more.The core JFTJ mission remains available to everyone.https://www.youtube.com/channel/UCzuPs5pny7HZ_VJzZ4qIoSA/join Join the JFTJ Road Crew⁠📌 TIMESTAMPS0:00 — 39 Treatments, 8 Weeks — What Comes Before #11:36 — Welcome — My Real-Time Prostate Cancer Journey2:33 — I’m a Patient, Not a Doctor3:26 — My Plan: 39 Treatments, 5 Days a Week3:59 — What Radiation Simulation (Mapping) Actually Is4:46 — Why Your Bladder & Bowel Matter5:29 — Prep Starts Before You Leave the House6:05 — Don’t Copy My Prep Routine — Ask Your Team6:57 — What the Simulation Appointment Feels Like7:58 — Your One Job: Stay Still8:44 — Does Radiation Simulation Hurt?9:51 — What Happens After Simulation10:58 — Tracking the Mile Markers: 1, 2, 3…3912:33 — 5 Questions to Ask Your Radiation Team14:27 — Free Guide: Ask One More Question14:49 — Part 2: My First Radiation Treatment15:10 — Subscribe & Share Your Story16:00 — Cancer Changed Our Plans — The Adventure Continues🔔 FOLLOW THE JOURNEYI’m documenting this experience in real time as I move from radiation mapping through 39 treatments.New videos every Sunday at 10:00 AM ET.👉 Subscribe to Jonesing For The Journey⁠🔗 WATCH NEXT▶ I Thought I Was Done With Prostate Issues — I Was Wronghttps://youtu.be/TET-P0iAi9M▶ 6 Things Nobody Warns You About After Radical Prostatectomyhttps://youtu.be/C2_zxAR85_w▶ I Almost Missed My Aggressive Cancer Because of Thishttps://youtu.be/o1VjjdztnVk🎧 PREFER TO LISTEN?The podcast version of this episode arrives Monday at 11:00 AM ET on Spotify.🤝 SUPPORT ZERO PROSTATE CANCERSue and I are proud to support ZERO Prostate Cancer through Team Jonesing for the Journey.💙 Support Team Jonesing for the Journey:https://support.zerocancer.org/goto/JonesingForTheJourney ⁠💙 PATIENT & TREATMENT SUPPORTAFFILIATE DISCLOSURE: As an Amazon Associate, I earn from qualifying purchases. Some links below are affiliate links, which means I may earn a commission at no additional cost to you.➜ Clever Fox Medical Planner / Health Journalhttps://lasso.to/50jFK0Zx5e➜ Amazon Basic Care ClearLaxhttps://lasso.to/Z9qQ82RItx➜ Gas-X Extra Strength Chewable Tabletshttps://lasso.to/EdixRhBuaeThese products reflect my personal experience, not medical recommendations. Follow your healthcare team’s guidance.⚕️ MEDICAL DISCLAIMERThis channel documents my personal experience with prostate cancer diagnosis, surgery, treatment and recovery. It is for informational and educational purposes only and is not medical advice.Your diagnosis, preparation instructions and treatment plan may differ from mine. Always follow the guidance of your physician, radiation oncologist or other qualified healthcare professional.And So…The Adventure Continues.#ProstateCancer #RadiationTherapy #ProstateCancerTreatment
Inside My Prostate Cancer Radiation Simulation: A Patient’s View
A frightening PSA. Prostate cancer. A family suddenly trying to understand what comes next after a health crisis.That’s one of the reasons we built a new home for JonesingForTheJourney.com.I wanted there to be one place where a patient, spouse, caregiver, or family member could begin without having to sort through dozens of videos just to answer one question:“Where do I start?”Real stories. Practical resources. Patient advocacy. Hope.🌐 JonesingForTheJourney.comHaving prostate cancer is overwhelming, but you don't have to navigate the next steps alone.If you just received a frightening PSA, finding reliable information shouldn't be another full-time job. This video connects you with the essential prostate cancer help needed to move forward confidently. We offer a clear starting point for anyone newly diagnosed.Visit our resource hub to begin your journey.Having prostate cancer is overwhelming, but you don't have to navigate the next steps alone.If you just received a frightening PSA, finding reliable information shouldn't be another full-time job. This video connects you with the essential prostate cancer help needed to move forward confidently. We offer a clear starting point for anyone newly diagnosed.Visit our resource hub to begin your journey.
What to do the moment you hear 'Prostate Cancer.' #prostatecancer #health #shorts
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More Than a YouTube Channel

The journey doesn’t stop when a video ends. Throughout Jonesing For The Journey, you’ll also find written Mile Marker stories, patient advocacy resources, practical guides, podcast episodes, recommended products we’ve personally found useful, and opportunities to connect with the growing JFTJ community.

READ THE MILE MARKERS GET THE FREE GUIDE JOIN THE JFTJ ROAD CREW LISTEN TO THE PODCAST

Real Life. Real Journeys. Real Hope.
And So…The Adventure Continues.

Go A Little Farther With Us

Join the JFTJ Road Crew

If Jonesing For The Journey has encouraged you, helped you ask one more question, or simply reminded you that you are not walking this road alone, there is now another way to support the mission.

The JFTJ Road Crew is our YouTube membership community for those who want to help support the stories, patient advocacy, resources, and conversations we are creating through Jonesing For The Journey.

Road Crew members receive extras along the way including custom badges and emojis, members-only updates, behind-the-scenes content, early looks at selected projects, polls, and opportunities to help shape what comes next.

One thing will never change:
Important patient advocacy, prostate cancer education, and JFTJ resources will continue to remain available to everyone. Membership is about supporting the mission — not buying access to important information.

None of us travels this road alone.

JOIN THE JFTJ ROAD CREW Not ready to join? Watch and subscribe on YouTube.

Real Life. Real Journeys. Real Hope.
And So…The Adventure Continues.

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